Its been awhile

Ok so I have not exactly blogged any lately. Its been a long time. I think since I last wrote anything I have gone back to work, slightly started to walk better, and decided that I will not try for disability. I do now have a handicap sticker for my car but I do not always use it. Just a little stubborn I am. I only work part time and am living with my family. I do not wish to always live with my parents. It is kind of embarrasing to be almost 30 and living with family. However I wish to return to college and have to live with them if I am going to be spending my time in school. I just do not know what I will major in. I am thinking about accounting but also am thinking about computer programming. There is many other things that I think about majoring in and it changes from day to day. I realize that no one but me is going or currently going to this blog but I will start to blog here anyway. Maybe the more I blog the more people will come to see what I have to say.

Time to go to work

Its frustrating when you have to go back to work because of money but your not able to get into see the doctor for six weeks and you need him to sign off on you returning to work. I guess this is my fault. I knew a long time ago when I would have to go back to work. I just did not know they would want his approval.

They tell me I am disabled

I have been on a leave of absence from work for two months now. I had to leave for awhile because I was going through a flareup and it was to much for me. While I was working my coworkers would tell me on a daily basis that I should just collect disability and stop working forever. First of all it not all that easy to be put on disability. You can not just tell the government that you are disabled and expect a check. Secondly I do not know if I want to be considered disabled. I am only 29. There may be a lot that I can not do but there is still some things that I can do.

Multiple Sclerosis Medication

Before I was born my granddad had a disease called Addison's disease. He lived with it until he died at the age of 85. When they first diagnosed him he almost died because of the disease. My family had to move to be closer to some doctors that new more about Addison's disease. From what I know it has to do with your adrenal gland not working right. I tell you all this because at the time he was diagnosed it was a bad disease to have. But with time and research they created some medication that did not cure him but made it so all he had to do is take a pill every day and everything was fine. I believe this could be the case some day with multiple sclerosis. It would be great if I could just take a pill everyday and then I would fill fine. Maybe I would not have balance issues or be very weak. Maybe I would not have vision problems. That could be the future. A pill a day keeps the MS away.

In today's world I take a medication called Copaxone. Everyday I give myself a shot. It is considered a good drug. They have made some good progress with the research on MS. There are other drugs besides Copaxone. Avonex is another medication. With Avonex you give yourself a shot once a week. Yet another medication is Tysabri. Here you get the drug through an iv once every four weeks. My doctor is talking about me switching to Tysabri some day. They have good results with all of these drugs. So I guess I can say I now am more hopeful of the future. I do not have to end up in a wheelchair. Someday I can take a pill and everything will be okay.

Having a flareup

Recently I have been going through what is known in the Multiple Sclerosis world as a flareup. This is when all your problems seem to get worse and sometimes you can develop some new ones. I already struggle to walk but when this occurred I barely could walk to the car. I normally would fall down at least once a week but now I was falling down almost daily. What really took my surprise was I could no longer sign my name or do much of anything with my right hand. After seeing the doctor they gave me steroids through an iv. For five days I went to the hospital and set there for two hours while they gave me steroids. This definitely made me stronger where I could walk better and sign my name again. Thankfully there are people and medicine out there that will help me.